Heard

Working to Advance Health Equity in Africa

Research project

“Nathi Singabantu”: The Disabling Effects of HIV in the Era of ARV Treatment – A Pilot Study, 2010-2011

Overview:

This study investigates the experience of disability among People Living with HIV (PLHIV) who have been on ART for 6 months or longer. The study uses the ICF framework as a lens to understand the disability in the context of HIV in the southern African region. It includes two components, a) a systematic review and b) a qualitative enquiry with people who are on ART in a semi-urban setting in South Africa. The study is led by Dr Jill Hanass-Hancock in conjunction with the co-investigators, Dr Stephanie Nixon (ICDR, Canada) and Dr. Hellen Myezwa (WITS University, South Africa).

Objectives:

  • To develop a synthesis of the evidence of HIV-related disability in PLHIV in the era of widely accessible ART in hyper-endemic countries
  • To investigate the experience of disability among PLHIV on ART in a public health care setting in South Africa
  • To investigate if this experience is shaped by contextual factors and gender.

Methodological Approach:

The scoping review uses systematic review techniques. Disability is defined using the ICF as a guiding framework. Literature is searched using disability (ICF domains) and HIV and their synonyms as a search string. The search is limited on hyper-endemic countries.

The qualitative enquiry includes in-depth interviews with 19 participants (9 men/10 women on ART) to explore if and how they experience disability. The in-depth interviews are guided by content analysis based on the ICF framework developed by the World Health Organisation (WHO).

Key outputs

Journal article

Nixon, S., Hanass-Hancock, J., Whiteside, A and Barnett, T., 2011, Increasing Chronicity of HIV in Sub-Saharan Africa: Re-thinking “HIV as a Long-Wave Event” in the Era of Widespread Access to ART Globalization and Health, 7 (41), - , BioMed Central, doi:10.1186/1744-8603-7-41

Hanass-Hancock, J., and Casale, M. 2014 An exploratory model to illustrate the interrelationship between HIV, disability and caregiving in Southern Africa Journal of the Association of Nurses in AIDS Care, 25 (4) 351-363, Elsevier

Cobbing, S., Hanass-Hancock, J., and Deane, M. 2014 Physiotherapy rehabilitation in the context of HIV and disability in KwaZulu-Natal, South Africa Disability and Rehabilitation, 36 (20), 1687-94, informa healthcare, DOI: 10.3109/09638288.2013.872199

Hanass-Hancock, J., Regondi, I., and Naidoo, K. 2013 Disability and HIV: What drives this relationship in Eastern and Southern Africa? African Journal of Disability, 2(1), AOSIS Open Journals, Doi: 10.4102/ajod.v2i1.25

Nixon, S., Hanass-Hancock, J., Whiteside, A., and Barnett, T. The Increasing Chronicity of HIV in Sub-Saharan Africa: Re-thinking “HIV as a Long-Wave Event” in the Era of Widespread Access to ART Globalization and Health, 7(41), BioMed Central, doi:10.1186/1744-8603-7-41

Hanass-Hancock, J., Myezwa, H., Nixon, S. A. and Gibbs, A. 2014 "When I was no longer able to see and walk, that is when I was affected most": experiences of disability in people living with HIV in South Africa Disability and Rehabilitation, 19, informa healthcare, DOI: 10.3109/09638288.2014.993432

Hanass-Hancock, J., Regondi, I., van Egeraat, L., and S. Nixon. (2013) HIV-related disability in HIV hyper-endemic countries: A scoping review World Journal of AIDS, 3 pp 257-279, Scientific Research: An Academic Publisher