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Access, Inclusion, Disability, Sexuality - Disability Zone at the XVIII World AIDS Conference at Vienna
The interrelation between disability and HIV has recently been recognised by UNAIDS, yet people with disabilities still lack access to information, treatment, care and support. In addition, with the arrival of ARVs in the South more PLHIV survive and some develop disabilities as a result of their illness. The disability and HIV networking zone at the XVIII International AIDS Conference raised awareness of the interrelation of disability and HIV as well as providing a platform for exchange of good practice and innovative advocacy ideas. The following presentations were seen at this very innovative zone.
Sunday 18 July
18.00 - 20.00 Opening Coffee Shop and Vienna Deaf Community HIV/AIDS Outreach
The coffee shop opened the disability zone at 6pm in the Global Village. Many presenters had arrived from different countries. The zone included many NGOs and research organisations such as IDDC, HEARD, VSO, EU-Cord, Liverpool-VCT, Mildway, DHAT, QASA, GALA, NADIPU, Health Canada, World Vision, Handicap International, Canadian Working Group on HIV and Rehabilitation, Youth with Physical Disability Development Forum and PHD students from Universities such as the University of KZN. The mixture of these different organisations and individuals contributed to a very successful zone.
Monday 19 July
10.15 - 11.00 Reality Kick - Deafness and HIV
Gay and Lesbian Memory in Action (GALA), South Africa
John Meletse shared his own experience of being diagnosed with HIV seven years ago. He presented his work with GALA, his experiences teaching Deaf learners in Soweto and distributed copies of the comic he created for this purpose.
Click here to download his comic
12.00 - 14.00 Meeting the challenges of disability and HIV in east Africa
This was a workshop on prevention, management and access issues for those living with disabilities and HIV in East Africa led by Dr Emmanuel Luyirika, director of the Mildmay Centre, a leading HIV care, treatment and training facility in Kampala, Uganda, and Dr Stephen Watiti, an HIV-positive clinician, author and passionate advocate for HIV rights. Click here to download the presentation.
For more information contact: .
15.00 - 16.00 Film The Voice of 650 Million x1
In this documentary produced by VSO, inspiring people with a disability in Asia and Africa show their world of exclusion regarding sexuality, HIV and reproductive health. This is a courageous and touching documentary portraying those who have been forgotten by governments, donors and NGOs. The 35 minute screening was followed by a discussion with Jessica de Ruijter (VSO NL) and Wanjiru Mukoma (Liverpool VCT, Kenya).
Click here for more information.
16.00 - 18.00 Facilitating discussion groups that empower people with disabilities about sexual health, sexual violence and HIV-AIDS prevention
Sheila Warembourg, founder of Sexual Understanding, guided the audience through the process of creating, facilitating and evaluating a discussion group with persons with a disability about sexual health, sexual violence and HIV-AIDS prevention, to encourage you to imagine being one yourself. Sexual Understanding works with persons with disabilities, their families and professionals to provide information and training on sexual health, sexual violence and HIV-AIDS prevention.
to contact Sheila Waremourg, or click here to visit the website.
Tuesday 20 July
10.15 - 11.00 Access to HIV prevention and sexual violence protection services among women and men with disabilities in Cambodia
Muriel Mac-Seing presented on the highlights, results and analysis of a study undertaken in Cambodia which aimed at shedding more light on HIV knowledge and sexual violence among women and men with different impairments. Gaps among services providers were also discussed, as well as ways forward. Click here to download her presentation.
For more information contact: .
12.00 - 14.00 The disabling effects of HIV - A new agenda for policy makers
Heath Economics and HIV/AIDS Research Division, South Africa
Many families are coping with the impact of AIDS-related disabilities. There is, however, very little research in sub-Saharan Africa which investigates the impact of adult disability on children in the home. This study used data from 1000 matched carer-child pairs in Kwa-Zulu Natal, South Africa to ask whether the extent of adult disability predicts the quality of children's domestic work, school attendance and mental health. Discussion was lead by Marisa Casale (HEARD) and Caroline Kuo (Oxford University).
For more information on the study visit: Disability Projects or contact Marisa Casale.
14.00 - 16.00 Film Stepping into the Unknown
HEARD and DHAT southern Africa.
This documentary tells the story of four disability and HIV activists who took the plunge at the world's highest swing in South Africa in an attempt to raise awareness of the interrelation of disability and HIV. Using the jump as a metaphor the film explores how confronting your fears enables you to be in control provided you get the necessary assistance. Because of the double stigma associated with disability and HIV disclosing a positive status might be even more difficult. Stepping off the cliff symbolises stepping away from stigma and fear.
Discussion with Phillimon Simwaba (DHAT), John Meletse (GALA), and Jill Hanass-Hancock (HEARD)
Click here to view the film or click here download the key messages, and a document on how the project was made can be downloaded here.
For more information contact: (DHAT) or Jill Hanass-Hancock (HEARD).
16.00 - 18.00 Developing the full potential of quadriplegics and paraplegics
Quadpara Association of South Africa.
QASA presented their Rolling Positive programme, funded by the Global Fund, which aims to train persons with disabilities as peer educators and lay counsellors on HIV/AIDS and STIs. The discussion, with Phillip Coetzer, Sipho Mdletshe and Vernon Openshaw, focussed on lessons learned regarding Sexuality and Disability and on life enhancing programmes.
For more information contact: .
18.00 - 20.00 Stopping the Brain Drain: Confronting the issues of HIV-related neuro cognitive impairment (HNCI) head on
Dr Simon Rackstraw, medical director of Mildmay UK, Europe's only specialist HNCI rehabilitation unit, based in East London, used his experience and expertise to offer real insight into this little known and often misunderstood effect of HIV and how Mildmay is striving to tackle it. Click here to download his presentation.
For more information contact: .
Wednesday 21 July
10.15 - 11.00 Reality Kick - Intellectual Disability and HIV
Toyin Aderemi, PhD Nigeria
In Nigeria, little is known about the vulnerability of intellectually impaired learners (IIL) to HIV infection. This presentation was based on a study which investigated HIV knowledge and sexual practices among mild/moderate IIL and mainstream learners in Nigeria. Findings point to the relevance of parents in HIV education for learners. The presentation discussed selected results from the study and presented a Sexuality and HIV Education Manual developed for people with intellectual disabilities. Click here to download the presentation.
For more information contact: .
14.00 - 15.30 Inclusion for all: An innovative approach to HIV and STI prevention among children with disabilities
Karen Sodoma of World Vision Canada shared best practice and lessons learnt from World Vision's first Disability/HIV programme in India. World Vision are partnering with local disabled people's organisations, the government, healthcare workers and school leaders to ensure persons with disabilities are included in HIV programmes. Click here to downloaded the presentation.
For more information contact: .
15.30 - 16.30 Film Disability and HIV/AIDS in Uganda
National Union of Disabled Persons of Uganda
This short film illustrated the challenges faced by persons with disabilities in Uganda to access HIV-AIDS prevention, care and support. Martin Babu Mwsigwa (NADPU) introduced Kwagala Betty Babirye, a Ugandan woman with a disability living with HIV who shared her experiences.
For more information contact: .
Thursday 22 July
10.15 - 11.00 Reality Kick - The Disabling Effect of HIV
Canadian Working Group on HIV and Rehabilitation.
This presentation discussed Episodic Disability as a result of HIV/AIDS and its implications as well as the role and opportunities for rehabilitation in addressing health related challenges faced by people living with HIV/AIDS. Click here to download this presentation.
For more information contact: .
12.00 - 14.00 Inclusion of youth with disabilities in Disability and HIV/AIDS programmes
Youth with Physical Disability Development Forum, Uganda
This presentation portrayed the role of youth with disabilities in promotion of a disability perspective in the implementation of HIV/AIDS programmes, the dissemination of information and the provision of services at grass roots level in Uganda. Click here to download this presentation.
For more information contact: .
16.00 - 18.00 Closing Coffee Shop
The Disability Zone was closed with a re-screening of Stepping into the Unknown and a community outreach discussion with the Austrian deaf community.
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